In Health and Wellness, SCI BC News, SCI Resources

Right now, there’s a lot of information in the news, online and on TV. What and who do we trust? Because there’s so much uncertainty about where to go for reliable information, our team at SCI BC compiled a comprehensive list of trusted sources.

Also, if you missed our Virtual Peer Group on SCI and COVID-19, check out the video recording of the session here, or read on for answers to the most frequently asked questions that we’ve received from our Peers over the last few weeks which are specific to spinal cord injury or similar disabilities below.

We will be updating this post with more FAQs as they become available—so please keep checking back for the latest information. Got questions? Contact SCI BC’s Infoline at 1-800-689-2477, or email at info@sci-bc.ca.

I think I might have the virus, what do I do?
  • Read what to do on the BC CDC website: http://www.bccdc.ca/health-info/diseases-conditions/covid-19
  • Take the online self assessment tool for people with symptoms or who are concerned they have the virus: https://covid19.thrive.health
  • If you are in a high risk category (see FAQ below), ensure you share that information with 811 or any healthcare provider you speak to about your COVID-19 symptoms. Those in higher-risk groups must consider seeking help earlier if you have symptoms.

Image Credit: Twitter @VCHhealthcare

What if my caregiver has symptoms of COVID-19?
  • If they have been in contact with someone with symptoms or confirmed COVID-19 (including exposure at another job), they should self-isolate for 14 days and not be in contact with you or other clients.
  • If they show symptoms, ensure they contact 811 or refer them to the self-assessment tool: https://covid19.thrive.health
  • If a caregiver employee is sent home due to COVID-19 risk, you only have to pay the minimum 2 hour requirement or the time already worked, whichever is more.
  • Make sure to let employees who are sent home sick know that there is an EI sickness benefit for those forced to quarantine due to COVID19, they can contact EI for more information.
Am I at higher risk for COVID-19 because of my SCI/Disability? Is it more severe?

SCI & COVID 19  resource from SCI Canada: https://sci-can.ca/covid-19-guidance-spinal-cord-injury-community-20200312

COVID-19 is a viral illness that results in very serious pneumonia in a small percentage of cases, particularly the elderly and those who have other health issues that complicate how COVID-19 affects the body. There is no treatment for it other than supportive care, and in serious cases, hospital treatment is required – sometimes in the ICU. We don’t know a lot about COVID-19, so what we know about the risks for people with SCI are based on how SCI affects breathing, common SCI complications, and how living with SCI can make it harder to protect ourselves from infection.

Everyone with SCI has some degree of impairment in respiratory function because of how spinal cord injury weakens the breathing muscles of the rib cage, abdomen or diaphragm. Some complications of SCI may increase the risks of getting a more serious case of COVID19, such as cardiovascular disease. People with SCI also have additional risks of exposure to COVID-19 as those who require attendant care cannot avoid close contact with caregivers while working with them, especially those whose caregivers also work with other vulnerable people or at hospital sites.

There is currently no treatment for COVID-19 other than supportive care while the virus is fought by our immune systems, so our best defense is to be vigilant about self-isolation to avoid being exposed to the virus at all.

How do I keep my hands clean when I have to touch my wheelchair?

Public health experts have advised everyone to wash our hands regularly to prevent spread of COVID-19 via contact with respiratory droplets. It can be harder for people using wheelchairs to do so if we are always touching our wheelchairs. It is important that you also wipe your wheelchair wheels, high-touch areas you use to transfer, and joystick or armrests every time you wash your hands. See the hand washing guide here, developed by John Shepherd at the University of Toronto with input from SCI Organizations.

SCI specific resources about COVID19

SCI BC ReachOut Session on COVID19 (from May 17 2020): https://youtu.be/bw2r_AsgPgo

SCI BC Ask the Expert session with Spinal Cord Injury specialist Dr. Andrei Krassioukov joins Teri Thorson and Peers from around the province in this Q&A from April 27 2020 – click here to watch.

SCI BC Ask the Expert session with GF Strong’s Physical Therapist Shannon Sproule, Occupational Therapist Cynthia Morin, as well as UBC’s Jasmin Ma and Kathleen Martin Ginnis. Find out what the options are regarding rehabilitation therapy during this time. Q&A recorded May 4 2020 – click to watch. 

SCI & U – Resources

In this at-home resource list you’ll find a wealth of information on living day to day while self-isolating. From online games, virtual events, physical activity to grocery shopping tips and hand hygiene for people with SCI.

If you’re looking for resources for mental health and respiratory care refer to this document which addresses depression, the psychological impact of quarantine and how to reduce it, SCI Respiratory care specific to COVID-19 and much more.

BC CDC advice for Chronic Illness and COVID19: http://www.ca/resourcegallery/Documents/Guidelines%20and%20Forms/Guidelines%20and%20Manuals/Epid/CD%20Manual/Chapter%201%20-%20CDC/COVID-19-Handout-chronic-disease.pdf

SCI & COVID 19 (SCI Canada): https://sci-can.ca/covid-19-guidance-spinal-cord-injury-community-20200312

SCI and COVID-19 (Reeve Foundation): https://www.christopherreeve.org/blog/daily-dose/the-coronavirus-and-spinal-cord-injury

Should I still go to my previously-scheduled medical appointment or treatment?

There’s not always a clear answer to this question, but here are some things to consider:

Call the provider’s office first to ensure they are still seeing patients.
Consider how this appointment/treatment may put you at risk: will you encounter anyone else who doesn’t live with you while keeping the appointment (ie transit/taxi, waiting rooms, etc.)? Will you be in a space where there are at risk patients or caregivers? Will you be in contact with healthcare providers who may be exposed to COVID-19 (ie: in the ER)?

Will missing the appointment/treatment cause you medical withdrawal from medications or result in acute negative health issues requiring hospital care? If so, try one of the options below:

  • Ask the provider’s office if they can do a phone appointment instead. Many specialists and physicians are doing phone appointments to keep patients out of their waiting rooms.
  • Try seeing a primary care/family doctor using an online virtual health service like the following (free for people on BC MSP):
  • Babylon by TELUS Health is a free healthcare mobile app that allows you to check symptoms, consult with doctors and access your health records: https://www.telus.com/en/bc/health/personal/babylon
  • AccessVirtual, formerly Medeo, allows you to video visit with the family doctor or specialist from home using your computer, iOS or Android device. https://accessvirtual.ca/british-columbia/en/
I’m getting low on medical supplies, and am afraid I’ll run out, what should I do?
  • BC Pharmacies are now allowed to provide refills of prescribed medication without a new prescription. Contact your local pharmacy for information about delivery. Health Canada has issued a temporary exemption for access to opioid medications for people with pain. More information is here, but you may need to speak to your pharmacist about it before refilling as the exemption was only issued March 24:
  • Contact Infoline – 1800 689 2477 or info@sci-bc.ca and let us know your need
  • Check our Swap n Shop service – sci-bc.ca/swapnshop – post a request for the supplies you need and browse offers for supplies
  • Macdonalds Pharmacy still has gloves and other supplies – delivery available within metro Vancouver and Fraser Valley
  • Ask your pharmacy if they have any supplies behind the counter (specifically for medical needs like yours) – in many locations they are hiding some medical supplies like gloves and wipes for their patients because of hoarding.
How do I work with my caregiver during this time?
  • Contact your CSIL worker if you are having issues securing caregivers, or getting them adequate supplies to protect you both.
  • You can use agency caregivers if you aren’t able to secure usual caregivers using your CSIL funding, however they are more expensive and may already be working at capacity.
  • How do I maintain self isolation with my caregivers working so closely with me? Caregivers need to work closely in order to support us, but you should take great care that they and you are protected. This is a great guide to precautions to take – and remember, you can cover the protective equipment like gloves and masks under your CSIL funding. https://www.publichealthontario.ca/-/media/documents/ncov/factsheet-covid-19-guide-isolation-caregivers.pdf?la=en
    SCI Alberta also has online training modules that can be found here: https://scialberta.online-compliance.com/PreRegister.php
  • How do I deal with caregivers cancelling shifts or being unavailable? What if they are exposed to high risk people at another job? Those on CSIL (individualized caregiver funding) needing help regarding caregiver shortages, questions re: management of caregivers during COVID19 can also call the Individualized Funding Resource Centre (IFRC), supporting people with home individualized funding/caregiving: https://www.ifrcsociety.org
I’m having trouble with self-isolation because someone I live with is in regular contact with symptomatic people or is not following social distancing or isolation precautions, what can I do?

Protecting your health is extremely important in this situation. You have every right to maintain your isolation and ask your housemates to do the same. It gets thorny when they refuse or clearly are not, but there aren’t a lot of clear options about what to do next:

I have questions about ventilator/respirator supplies or support.
Mental health resources

This crisis is an unprecedented challenge to our mental health, and there are resources out there to support you during this time.

SCI BC Mental Health Referral Resource

Emergency Help

If you feel that you are out of options and are going to hurt yourself, call 911.

  • Are you thinking of suicide?
  • What is your plan? / Do you have a plan?
  • How and when will you carry it out?
    …Then call 911 or ask someone nearby to call for you.

Call the provincial suicide crisis line, open 24/7 if you or someone you know is considering suicide. 1-800-784-2433

Non-emergency help

  • Call 310-6789 (no area code), open 24/7 for non-emergency emotional support and advice, as well as referrals to local health authority services.
  • Online Chat Service for Youth: www.YouthInBC.com (Noon to 1am)
  • Online Chat Service for Adults: www.CrisisCentreChat.ca (Noon to 1am)

Helpful Resources

At-home tips for managing anxiety

It’s natural to feel a little anxious during a pandemic! Here are some great points our team learned this week to help manage anxiety during these turbulent times.

Limit access to news
Limiting and being strategic with what you watch or read is really important for your mental well-being. There’s a lot of information out there, so sticking to factual stories and limiting exposure to opinion pieces can be very helpful. It’s also good to remember to help our friends by being very cautious when sharing information on social media by ensuring it is from an accurate source.

Connect with people, but don’t just talk about COVID 19 

When you chat with your friends or family, it is important to be creative with your topics. There’s more going on besides the pandemic, and chances are everyone wants a break from thinking and worrying about it. So, reach out in a way that works for you—even a simple text is enough. You can help someone feel connected, which in the long run and has a positive impact on health.

Exercise 

The benefits of exercise for mental health is well established. Staying as physically active as you can during self-isolation can help with anxiety. SCI BC Peer coordinators are offering virtual exercise classes every week: yoga every Thursday and virtual fitness every Friday. If you prefer to work out on your own schedule, we have some wonderful fitness sources here.

Stay busy and have a schedule/plan for each day
Maintaining a healthy routine is important for mental health especially for those now working from home or unable to leave their home. Try getting up at the same time, dress how you normally would, and complete your normal daily routine. One Peer reports that once he started doing this, he felt much better.

Talk to kids in an age-appropriate way.
Let them know there is hope and that what they are doing (eg. not playing with friends) will help keep them safe and help others. Signs that kids are struggling and having anxiety are usually stomach aces, tantrums, and poor sleeping. Keeping an age-appropriate conversation with your children will help them understand what’s going on around them.

Limit screen time
This can be a tough one, but chatting to a friend over the phone, a neighbour at a safe distance, or looking out the window and people or nature-watching can break up the screen time and give you a much-needed break.

Ask people what they need or want
Rather than assuming what will help, just try asking. Chances are your friend or family member will have some idea about what can help. This takes the guesswork out for you, lets them know you’re there for them and validates their needs—which can be very reassuring.

Find humour where you can
Funny movies, tv shows, audio and real books, online humour. There’s a lot out there—take time to enjoy it!

Be creative to find ways to stay connected
Zoom, Face Time, or a simple, but effective telephone call can connect you with a friend or family member. Another popular way to connect is through group chats on Whatsapp. If you apply these ideas you may find you don’t go for a few hours without chatting to someone.

Find a purpose for each day and longer term
Set a small goal for each day—it could be connecting with a friend or trying out a recipe that you’ve been curious about. You can also set longer term goals that take incremental dedication, such as working on an art project or signing up for an online class.

Community Helping organizations and food delivery for those quarantined/isolated at home

Search COVID-19 Coming Together on Facebook for a Coming Together group near you.

Call Infoline for more support in connecting with help – 1-800-689-2477 or info@sci-bc.ca

Vancouver / North Vancouver:

Meals on Wheels – Health & Home Care Society of BC www.carebc.ca/meals-on-wheels.html

Jewish Family Services https://www.jewishvancouver.com/community-directory/jewish-family-services

Vancouver Sun Adopt a School https://vancouversun.com/tag/adopt-a-school/

COVID-19 Coming Together Vancouver Facebook Group—Click Here

COVID-19 Coming Together North Vancouver Facebook Group—Click Here

Richmond

Relief Fund for Low-Income Richmond Residents: Richmond Homeless Connect: Request application form and fund criteria here: richmondcommunityconnects@gmail.com  They will make every effort to give a decision within 3 business days. If the matter is time sensitive and requires a quicker response, please call 604-644-7247 to discuss your referral.

Richmond Food Bank http://richmondfoodbank.org/

Richmond Food Security Society (hampers for families with school-age children) https://www.richmondfoodsecurity.org/

Richmond Cares Richmond Gives https://rcrg.org/

COVID 19 Coming together Richmond Facebook Group—Click Here

New Westminster:

Friendly Support calls can be made to older adults 60+ and persons with disabilities in New Westminster. They can arrange for a staff person or qualified volunteer to call you as needed to: check your safety and health, offer supports or resources, or to socialize (call length may be limited). Support calls will start as soon as possible after registration.

If you wish to register, please call Century House 604-519-1062, or 604-519-1069, or 604-519-1066 from Monday – Friday 9:00am – 4:00 pm.

Tri-Cities – Coquitlam, Port Coquitlam, Port Moody:

COVID-19 Coming Together Tri Cities Facebook Group—Click Here

COVID-19 Coming Together Ridge Meadows Facebook Group—Click Here

Covid-19 Coming Together Coquitlam Facebook Group—Click Here

Fraser Valley:                                         

COVID-19 Coming Together Fraser Valley Facebook Group—Click Here

Seniors Come Share Society – Seniors Peer Help / Food Delivery/ Home and Day Programs – White Rock and Surrey: https://www.comeshare.ca/

Covid Isolation Assistance White Rock/South Surrey Facebook Group—Click Here

Volunteer Food Delivery and Phone Calls: https://bc.ctvnews.ca/we-are-here-to-help-volunteers-delivering-food-phoning-people-isolated-by-covid-19-1.4857501

Langley Meals on Wheels: www.lmow.ca/

Chilliwack Area:

CCFC Community Cares Facebook Group—Click Here

CCFC Sign up to receive help

Squamish/Sea To Sky:

COVID-19 Coming Together—Squamish Facebook Group Click Here

Vancouver Island – north of the Greater Victoria area – Capital Regional District:

Beacon Buddies: matching service for support and help for grocery meds and mail pickup for people quarantined. Duncan, Chemainus, Nanaimo, Ladysmith, Qualicum, Parksville, Port Alberni, Campbell River, Comox/Courtenay:  www.nanaimobeacon.com/buddies

Vancouver Island:

Greater Victoria Mutual Aid Facebook Group—Click Here

BC Wide—no community specified:

Resources for All BC First Nation Individuals: https://www.bcafn.ca/sites/default/files/docs/individual.pdf 

Mobilizing Local Love – The United Way

Acts of local love are more important now than ever, and the United Way is asking everybody to come together to help one another during this difficult time. They want to ensure that everyone in our communities gets the help that they need.

If you need help with basic needs or if you just want to safely connect with people in your neighbourhood let them know. Sign up here: https://www.uwlm.ca/mobilizing-local-love/ and they will connect you to a pre-screened volunteer who can help.

BC Wide Facebook Group – BCCovid 19 Coming Together—Click Here

  • A facebook group that shares tips about getting through this time
  • Links to free grocery delivery
  • Can ask for help
  • Search facebook for “COVID19 coming together” and touch the “Groups” filter to see all the coming together groups, there is probably one in your area.

Coronavirus SOS –delivery and peer support: https://coronavirussos.org/?fbclid=IwAR0edIc-xKmOYe2x88ejZtndQCZuaVAEvJuI0L0wVamOopofNJb-re1HsMo

Grocery Order/ Meal Delivery

Spud—Offers Free Grocery Delivery —Metro Vancouver and Vancouver Island:https://www.spud.ca/index.cfm?lid=1

Walmart—Customers can place an order over the phone and schedule a time for pickup or delivery with one of their customer service representatives. They’re offering contact-free pick up, or touch-free delivery.  Here’s how: https://bit.ly/2YCovcz 

Better Meals http://bettermeals.ca/index.php/main/links/index

Share the Goods

Stocking a households with food and supplies to hunker down for a few week is a costly endeavour that not everyone can afford. If you can use a little help or are able to provide support, check out this site.

Covid 19 Resources in Five Languages
https://digem.med.ubc.ca/covid-19-multilingual-resources/

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