Spina Bifida is a neural tube defect. It is the number one disabling birth defect, occurring in one in 750 children born in Canada. Spina Bifida results in varying degrees of permanent paralysis, loss of sensation and bladder and bowel dysfunction. In some cases, it can limit hand function, visual, hearing and learning abilities.
Hydrocephalus is the accumulation of cerebrospinal fluid within and around the brain. Over 80% of individuals with Spina Bifida have hydrocephalus. Hydrocephalus can also occur as a result of trauma, drug reactions, and as a part of the aging process. Hydrocephalus can result in impaired vision, headaches, hearing sensitivity, seizures, and mobility impairment.
This organization has information about these two conditions, resources for parents, financial support for individuals, and lists of relevant resources for those affected.