This list of resources was gathered after we received questions about peer support for disabilities other than SCI, such as Spinal Muscular Atrophy (SMA). While we welcome anyone with SCI or a related physical disability to join our peer network, some people may also wish to seek support from groups more closely tailored to their specific experience.
Let’s Live a Little: Private Facebook group for people with Neuromuscular Disorders in BC who are transitioning from services at BC Children’s Hospital to adult services.
SMA Support System: Private Facebook group for adults. Primarily geared to parents of kids with SMA in Canada but offers useful support and contacts.
Living with MD: Private Facebook group for adults with Neuromuscular Disorders. Worldwide.
Cure SMA Canada, BC Chapter: Private Facebook group discuss upcoming meetings, fundraisers and events for the BC Chapter of Cure SMA Canada.
Intimately Disabled: Private Facebook group for for women, non-binary people and trans men with all disabilities. It’s a judgement-free group for people to share and ask anything about reproductive health and well-being in general (this includes sex, periods, relationships, etc).
If you know of a resource not listed here, please contact our InfoLine to share it with us.
