Summer is here! For many, it’s a season filled with moments that matter – long, sunny days outdoors, trying something new, and making memories with the people you love.
But for someone living with a spinal cord injury, those moments can feel out of reach and impossible at times. That’s why your support means so much. Let me share the story of a devoted father from Victoria with you.
Six years ago, Brian’s life changed when he developed a rare condition that caused him to lose feeling in his legs. It took nearly a year of misdiagnosis and a visit to the emergency room before doctors finally found the problem. They discovered a small abnormality on Brian’s spinal column that left him with ongoing mobility challenges.
Then, earlier this year, Brian received even more devastating news. Tests confirmed that he has ALS. It was a shocking blow to the single father who was already parenting the best he could with a disability. And now, as Brian’s condition progresses, he relies more and more on a wheelchair to get around. Even simple outings take extra effort. But Brian is determined to make the most of the summer with his 11-year-old son, Mason, by his side.
We know that a spinal cord injury is extremely difficult, whether it results from an accident, illness, or disease. It affects every aspect of daily life and the lives of loved ones. But you can make a difference. Thanks to your generosity, we bring people together and provide the answers that make living with a physical disability a little easier.
Brian describes himself as a “research hound”. He came across our programs while looking for resources on spinal cord injuries. It was a turning point. Brian contacted Scott, our friendly coordinator in Victoria, and soon attended his first peer event. What he discovered there changed everything. “I met all sorts of amazing people who understand what I’m going through. It brought a real sense of community and relief. It made me realize I’m not alone on this disability journey.”
This is the power of peer support! We host events across the province that bring people together. It’s a chance to meet others, share tips and tricks, laugh, sometimes cry, and learn about life with a spinal cord injury. It can be as simple as dropping in on a coffee support group or as exciting as trying adapted kayaking for the first time. And it’s all thanks to your generous donations.
For Brian, these experiences are even more important as his disability continues to progress. Peer support has become a “lifeline” for him and brings joy even during the most difficult times. Brian laughingly calls Scott his “ambassador of fun” for the way he gets everyone out doing activities they never thought possible.
Above all, our peer events give Brian something he values deeply – time with his son. He was delighted to learn that family members are always welcome. Some of Brian’s most treasured memories have come from sharing these moments with Mason.
“Mason was really excited about the archery event. It’s not something I ever imagined myself doing. But surprisingly, I loved it. Heck, who doesn’t want to hit a bullseye! I couldn’t really pull back on the bowstring myself, but one of the volunteers helped me and we nailed it. For me, I love that I can say I did it. And for Mason, shooting arrows was a dream come true. Another memorable day is the fishing event at Elk Lake. It was wonderful to be in nature and enjoy some friendly competition with the other folks. Incredibly Mason caught 17 fish that day and blew everyone else out of the water! I still don’t know how he did it. He just kept popping them up. I’m so grateful that you make days like these possible for us. They are reminders that life is still full of joy.”
Your financial support allows us to host activities like these all over the province. There is something for everyone – summer barbeques, pizza and games nights, adapted cycling rides, camping adventures, and so much more. People come away with increased confidence, new friendships and the realization that life can be full after a spinal cord injury.
Today, Brian is focused on making every moment count. He is creating lasting memories with his son. He is giving back by helping others with complex disabilities. And he is actively seeking participation in national clinical trials, with the hope of advancing science and, of course, perhaps a little more time.
Brian knows how vital peer connection is, especially during the summer months. The risk of injury rises as more people head outdoors – and we must be ready to help everyone who turns to us for support.
Please send your tax-deductible donation to Spinal Cord Injury BC today.Simply click the button below to donate online. Your gift helps people like Brian and his family stay connected, try something new, and enjoy the moments that matter the most. Thank you. Have a fun and safe summer!
With thanks,
Ed Milligan
Chair, SCI BC Board of Directors
